SUPPORT

Wheels for Van Driels

by Scott and Sonya Van Driel

We want to share our story of Dylan to create awareness of his life and his needs. We cannot provide for Dylan without an extended community of support.

We are Scott and Sonya Van Driel, and Dylan is our beautiful son and the amazing brother to our four year old daughter Marika. Dylan has Vein of Galen Malformation (VOGM), a rare and life-threatening disease. Though our life has dramatically changed with Dylan’s limitations and diagnosis, we have not lost hope; we believe that Dylan will continue to surprise us with small but precious accomplishments.

We did not have any concerns at Dylan’s birth, but within a few weeks of his life, we sensed something was wrong. After a series of appointments, tests, and an overnight stay in McMaster Children’s Hospital, we were given results of an MRI that would change our lives forever. We were told that Dylan has a huge pouch of blood in his head, taking up at least a third of the space in his skull. The doctor who shared the results with us was emotional and uncertain; we were directed to The Hospital for Sick Children where there was the possibility of learning more about Dylan’s condition.

At SickKids, Dylan was given the diagnosis of VOGM, and we were also told that Dylan has the largest and most complex diagnosis of VOGM globally known. This diagnosis is associated with serious potential complications such as strokes, brain bleeds, cerebral sinus thrombosis, hydrocephalus, congestive heart failure – and failure to thrive. Initially, we were in shock and then experienced a range of emotions that included fear, sorrow, and anger.

"Wheels For Van Driels". Craft ,Bake And Plant Sale

Saturday at 9:00am

1040 Balfour Rd Fenwick Ontario


"Wheels for Van Driels" Pig Roast
Sat. Aug. 9 4pm-10pm
Dave & Kathy Van Driel's, 214 Chantler Road